Privacy Policy

Last Updated: November 2, 2026

The Sickle Cell Disease Association of Wisconsin (SCDAW) respects the privacy of individuals who visit our website, contact our organization, and participate in our community initiatives.

This Privacy Policy explains the types of information that may be collected through our website, how that information may be used, and the choices available to website visitors.

By using this website, you acknowledge the privacy practices described in this policy.

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1. Information We Collect

Depending on how you interact with our website, SCDAW may collect information that you voluntarily provide, including:

• Your name

• Email address

• Telephone number

• City or general location

• Information submitted through contact forms

• Volunteer or partnership inquiries

• Communications you send to our organization

We may also receive limited technical information associated with website visits, such as browser type, device information, pages visited, and general website activity.

The information collected depends on the features and services available through our website.

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2. How We Use Information

Information submitted through our website may be used to:

• Respond to questions and inquiries

• Provide information about SCDAW's programs and services

• Communicate about transportation or hospital visitation inquiries

• Respond to volunteer and partnership requests

• Provide information about educational resources

• Process or coordinate donation-related inquiries

• Communicate about community activities

• Maintain and improve website functionality

• Protect the website from misuse

We seek to use personal information only for legitimate organizational purposes.

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3. Health-Related Information

SCDAW recognizes that individuals contacting our organization may have questions related to sickle cell disease, medical appointments, or other personal circumstances.

Our general website contact forms are not intended for collecting detailed medical histories, medical records, insurance information, or other sensitive health information.

We encourage visitors to avoid submitting sensitive medical information through general contact forms.

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If additional information is necessary to respond to a request for assistance, SCDAW may provide instructions for communicating through an appropriate channel.

This website does not provide emergency medical services.

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4. Donations and Payment Information

SCDAW may provide links to third-party platforms that facilitate donations or other financial transactions.

When you use an external payment service, your information may be collected and processed according to that provider's privacy and security practices.

Please review the applicable payment provider's policies before completing a transaction.

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5. Cookies and Website Analytics

Our website may use cookies or similar technologies to support website functionality, understand visitor activity, and improve the browsing experience.

Certain website features or third-party services may also use cookies.

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You may be able to manage cookies through your browser settings or through any cookie preference tools provided on the website.

Disabling certain cookies may affect website functionality.

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6. Third-Party Websites

Our website may contain links to external organizations, educational resources, donation platforms, or other websites.

SCDAW does not control the privacy practices or content of third-party websites.

We encourage visitors to review the privacy policies of external websites before submitting personal information.

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7. Information Sharing

SCDAW does not authorize the sale of personal information through this Privacy Policy.

Information may be shared with service providers when reasonably necessary to operate the website, process an authorized request, or provide an organizational service.

Information may also be disclosed when required by applicable law or to address legitimate safety or security concerns.

Any sharing of personal information should be limited to what is reasonably necessary for the applicable purpose.

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8. Information Security

SCDAW recognizes the importance of protecting personal information.

We seek to use reasonable administrative and technical measures appropriate to the information collected and the systems used.

However, no website, electronic communication method, or online storage system can be guaranteed completely secure.

Visitors should avoid sending highly sensitive information through unsecured communication channels.

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9. Information Retention

Personal information should be retained only for as long as reasonably necessary to fulfill the purpose for which it was collected, meet applicable legal requirements, or maintain appropriate organizational records.

Retention periods may vary depending on the type of information and the reason it was collected.

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10. Your Privacy Choices

You may contact SCDAW to ask questions about personal information you have submitted through the website.

Depending on applicable law and the organization's recordkeeping obligations, you may also request that information be corrected or deleted.

Requests will be reviewed in accordance with applicable requirements.

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11. Children's Privacy

Our website provides general educational information that may be useful to families and caregivers.

We do not intend for children under 13 to independently submit personal information through the website without appropriate parental or guardian involvement.

Parents or guardians who believe a child has submitted personal information may contact SCDAW to discuss the matter.

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12. Changes to This Privacy Policy

SCDAW may update this Privacy Policy to reflect changes in website functionality, organizational practices, or applicable requirements.

When updates are made, the revised policy may be published on this page with an updated effective date.

We encourage visitors to review this policy periodically.

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13. Contact Us

If you have questions about this Privacy Policy or the information submitted through our website, please contact:

Sickle Cell Disease Association of Wisconsin

Madison, Wisconsin

Website: www.scdaw.org

Contact Page: www.scdaw.org/contact

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We welcome questions regarding our website and privacy practices.