ABOUT THE SICKLE CELL DISEASE ASSOCIATION OF WISCONSIN
A Stronger Voice for Wisconsin's Sickle Cell Community.
Every person affected by sickle cell disease deserves to be informed, understood, and supported.
At the Sickle Cell Disease Association of Wisconsin (SCDAW), we are committed to increasing awareness, advancing education, and advocating for individuals and families living with sickle cell disease.
Based in Madison, Wisconsin, our organization works to strengthen community understanding and connect people with the information and support they need.
We believe education creates understanding, advocacy strengthens communities, and compassion makes a lasting difference.
ROOTED IN COMMUNITY. DRIVEN BY PURPOSE.
Supporting Individuals. Educating Families. Strengthening Wisconsin.
Sickle cell disease is a lifelong inherited blood disorder that can affect nearly every aspect of a person's life.
For individuals living with the condition, everyday experiences may include managing chronic pain, attending frequent medical appointments, navigating hospital stays, and addressing the emotional challenges associated with ongoing medical care.
Families and caregivers often face challenges of their own as they work to understand the condition and provide meaningful support.
The Sickle Cell Disease Association of Wisconsin exists to help address these needs through education, advocacy, and community involvement.
We believe that understanding the experiences of people living with sickle cell disease is essential to creating stronger, healthier, and more compassionate communities.
THE PURPOSE BEHIND OUR WORK
Our Mission and Vision
Our Mission
To advance sickle cell disease education, awareness, advocacy, and community support while helping individuals and families affected by the condition access information, understanding, and meaningful connections.
We are committed to creating a more informed Wisconsin where people living with sickle cell disease are heard, respected, and supported.
Our Vision
A Wisconsin where individuals and families affected by sickle cell disease have access to reliable education, compassionate support, and a community that recognizes their experiences and advocates for their needs.
OUR COMMITMENT TO THE COMMUNITY
Guided by Compassion. Strengthened by Advocacy.
Our work reflects the belief that meaningful support begins with listening, understanding, and taking action.
OUR WORK IN ACTION
Turning Awareness Into Meaningful Support.
Education and advocacy are central to our mission, but meaningful community support also involves recognizing the everyday challenges faced by people living with sickle cell disease.
SCDAW focuses on initiatives that help individuals and families feel supported and connected.
THE IMPORTANCE OF SICKLE CELL AWARENESS
Understanding the Condition Is Only the Beginning.
Sickle cell disease is a serious inherited blood disorder that can cause severe pain, anemia, infections, organ damage, and other complications.
While medical advances have improved treatment options, individuals living with sickle cell disease may still face significant physical, emotional, and social challenges.
Misunderstandings about the condition can also contribute to stigma and make it harder for individuals to feel heard and supported.
That is why education and advocacy matter.
When communities understand sickle cell disease, they are better equipped to recognize the challenges individuals face, respond with compassion, and support efforts that improve awareness and access to care.
At SCDAW, we believe informed communities play an important role in improving the experiences of individuals and families affected by sickle cell disease.
SUPPORTING THE PEOPLE BEHIND THE DIAGNOSIS
Our Community Is at the Heart of Everything We Do.
MAKE A DIFFERENCE
Your Support Helps Strengthen Our Community.
Whether you have a personal connection to sickle cell disease or are looking for a meaningful way to support others, there is a place for you.
